This piece was originally made as a custom order, but I had so many requests after sharing the photo to make it available to you!
This bracelet was inspired by my children (Colton & Frankie). They were born with a recessive genetic hearing loss which has caused them to lose their hearing in one ear each during their informative toddler years. We are unsure if the hearing loss will continue and affect the other ear, making them completely deaf.
We have been on a life-altering journey which has opened our up our eyes and introduced us to the Deaf community. Our family is actively learning American Sign Language (ASL). After much deliberation, we have decided to get Frankie a cochlear implant for her left ear, as she has no useable hearing left. This was a difficult choice, as it is a lifelong affecting decision.
I decided to use the sign for "I Love you" as when I first found out my children would possibly go entirely deaf, the first thought that pass my mind was exactly that. My biggest fear was that they would not be able to hear the words "I love you", especially while experiencing something as scary as losing their hearing. This is what inspired us to start learning sign language. It has opened our minds and hearts to a whole new community.
I created this bracelet to help create awareness for hearing loss and help Frankie & Colton feel supported by the community around them. 1 in 1000 babies is born with hearing loss. Most deaf babies are born to parents who have never met a deaf person in their life. I have learned through this journey that community and knowledge are key to working through fear of the unknown.
Colton & Frankie are healthy, intelligent, thriving toddlers. They inspire me daily by embracing a visual language and not letting their single-sided deafness hold them back. We will be going to the hospital for Sick Children in Toronto traveling across the country from Squamish BC. The surgery will take around four hours and is not covered by the BC healthcare system. We will be paying privately for the device and all travel costs. We will travel to Ontario nine times over the next 18-months for follow up care.
Thank you for supporting our family during our hearing loss journey, it is tremendously appreciated.
Love and light
Justine, Adam, Colton, and Frankie xoxox
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